Photo : French actress and television presenter Julia Vignali visits Leon at Institute Neuromyogene in Lyon, France on May 17, 2024. Leon suffers from a rare disease called GAN (Giant axonal neuropathy) or La neuropathie a axones geants (NAG) for which there is currently no treatment or cure. The institute Neuromyogene has a Laboratoire Physiopathologie et Genetique du Neurone et du Muscle (Neuron and Muscle Pathophysiology and Genetics Laboratory) which is currently studying and gathering funds from the Association Leozan to combat the disease. Giant axonal neuropathy (GAN) is a rare, inherited disorder that affects nerve cells, leading to muscle weakness and sensory problems, usually starting in early childhood. It is caused by mutations in the GAN gene, which disrupts the normal structure of nerve cell fibers. Over time, the condition leads to progressive disability. Photo by Eliot Blondet/ABACAPRESS.COM

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French actress and television presenter Julia Vignali visits Leon at Institute Neuromyogene in Lyon, France on May 17, 2024. Leon suffers from a rare disease called GAN (Giant axonal neuropathy) or La neuropathie a axones geants (NAG) for which there is currently no treatment or cure. The institute Neuromyogene has a Laboratoire Physiopathologie et Genetique du Neurone et du Muscle (Neuron and Muscle Pathophysiology and Genetics Laboratory) which is currently studying and gathering funds from the Association Leozan to combat the disease. Giant axonal neuropathy (GAN) is a rare, inherited disorder that affects nerve cells, leading to muscle weakness and sensory problems, usually starting in early childhood. It is caused by mutations in the GAN gene, which disrupts the normal structure of nerve cell fibers. Over time, the condition leads to progressive disability. Photo by Eliot Blondet/ABACAPRESS.COM